As much as some MS'ers like to go around saying I may have MS but MS doesn't have me (I collect all sorts of random quotes like that on pinterest, I understand) I will firmly state here: I disagree with that one.
MS has me and always has. The day I lost my vision was the day I knew I had no power over MS. Maybe it wasn't a battle for me because I grew up deaf. I was already "disabled" by society's standards so hey, what's another diagnosis?
I'm sure more are on the way haha.
It does not mean I am a wimp, it means lesions reside in my atrophied brain or spinal cord. Wherever it chooses. I am a host and the MS lesions are parasites. We co-habit together. Play nice, I say but I won't beg. Begging doesn't work.
I ignore MS as much as possible which is probably why I don't talk about it that much on my blog but I still have MS, or rather it has me firmly in its grips.
Right now I feel as if my body has been split in half. My left side hurts, my right side does not. In other words I have a pain syndrome only on my left side. Yes, I do.. from the tip of my still broken little toe to the top of my head.
It's been broken a lonnnnng time. Heal thyself, toe!
Speaking of muscle spasms - I woke up with one in the oddest place. The muscle behind your ear - the one that covers the hard bone. Mine has contracted and won't let goooooooo. Ooooouchhhhh....
So if you're wondering why I haven't been around to your blogs n' such... it's because I'm tired. I'm fatigued beyond belief.
Mentally and physically.
16 comments:
I will not pity you but I can sure as hell pray for you.
Blessings that you find relief of some kind today...and many happy thoughts your way.
Sherry
I still have MS too. I spend a lot of time in denial, but some days that doesn't work no matter how hard I try.
Yep...tired...that about sums it up.
Feel better sooon.
I hate MS. Sorry it chose you too.
Judy
Rest and feel better,, Sherry.
Peace,
Muff
I have MS too. It sucks. They can't count the leisons. They say I should be incapasitated and don't know why I look like nothing is wrong. But I fall, go blind here and there, hurt, can't feel things,etc.and deal with it. I think I just keep trying to go is what has kept me going and look to the future and hope it's there..Pray a lot and for others fighting it and a cure so others don't go through it. Try and stay optimistic-not easy!
Despite not having MS as you know I have EDS so many of the symptoms overlap. It is tiring admiting to that for me is hard. Right now emotionally I am not coping too well with my condition you know that. But no one in my family knows these days. Husband I think has run out of empathy. Good old empathy eh. He seems bored and unhappy. If I had the gumption I would ask to leave now. But I have no money and no where to go. So after 24 years, we carry on. Perhaps too this will pass. Obviously its not just the EDS. But at the moment it is winning and rest does help. I know that it is worse when I am stressed so I must try and address my stress. ha ha. Its that which came first question, chicken or the &^%*() egg? No reason to say this here all of this apart from the fact that I can I suppose oh and the bit that is the same for me and you is to rest when we should.Did I get that right?
Don't stop blogging Sherry I need you in my reader.
xx
I hope this session eases up soon for you, Sherry.
Oh yes. We need another word for MS fatigue. Fatigue doesn't cover I am so tired I feel sick, my bones hurt and I am going to go to bed tired and get up tired. A nap doesn't effing help much.
That said I can reread murder mysteries because I don't remember who died much less who killed them. And it is coming up to the time of the year when I could hide my own Easter eggs.
Hugs to you, my similarly afflicted friend.
Repeat to self: It is what it is.
Have something good to eat/drink.
Take the appropriate medications that work for you.
Cuddle up under blanket and gaze outside. Nature is healing. Set dish/cup down before falling asleep.
Hope you feel better soon.
I have a condition that mimics Meniere's disease. Actually, the doctors just call it that because they can't figure what it is. I get dizzy for a few hours, and then become exhausted and sleep for 16-20 hours straight. It feels surreal when I wake up. I'm never sure how long I've slept or what day it is.
My condition is intermittent, not anything like MS. Just feel like I can relate to the fatigue on some level.
Let's take a nap Sherry.
SoberMom, no relief yet but it will come. Maybe tomorrow, lol. It's not often I see another "Sherry" on here! =)
Karen, I rarely spend time in denial. Especially when tired! It wins hands down, every single time. LOL.
Judy, you didn't escape either so I'm sorry it chose you too. =(
Muffie, you tooooo!
djo, hello. I have no idea how many lesions I have. I can't have MRI's so I guess not knowing is a benefit in some ways. I was diagnosed via spinal tap. I am sorry to hear about yours. Are you planning to start a blog?
Achelois! =) I won't stop blogging, I have to go complain somewhere lololol. =) Better here than elsewhere... and yes I know what you mean, people get tired of giving you empathy. Only so much in the jar I guess. It's the same way with grieving....you get the sense they want you to shut up. Add MS and grief together, you have a toxic soup. Or so they think. In my opinion we are simply doing the best we can under difficult circumstances. Hugs to you....
Hey ya Jenny! =)
Elephant, funnnnnny. I have the same problem...can't remember who dun it. I'm so stealing your Easter Egg line! LOL.
Webster, that's my mantra - it is what it is. I say it almost hourly. (really) Sometimes it works, sometimes it doesn't. But it is the truth.
Lou, Meniere's! I have a few friends with it. One is battling it right now - she's Nicole's childhood friend and it is really impacting her life right now. ARGH. I hope you don't have too many spells. It can be surreal alright.
Have a good day everyone. =)
i so hate that saying about ms not having me... such bs... there isn't one minute of a day that i am not reminded of the beast... and that there isn't a ding dang thing i can do to change it....
what i have found is that going with it works better than fighting it... that's the other thing i get tired of hearing... how are you fighting it?
what? fight what? get well? what?
DAMN MS! I hate that you (and so many others) are suffering from it. Can I take a nap with you and Lou? Sometimes sleep is the only escape from all the pain in life.
Sometimes is is possible to do the "mind over matter" thing and think oneself into health -- but sometimes not. Praying for you...
Thank you so much for pointing us in the right direction. Very much appreciated.
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Sooo much negativity..I hve ms.diagnosed in 2002.n my left side is the prob...its hrd to make dat left leg move but I do it.i hve a belief n hve faith u must continue to believe n c it manifest.its not easy dis I noe.but I feel lucky n blessed cause it could b a lot worse.there r so mny illneses out there dat r worse.if I had to n inflicted by an illness let it b dis one.I pray for u all
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